Jonah Pournazarian is a bright, playful 7-year-old at Stephen S. Wise Temple Elementary School. He has a best friend, Dylan Siegel, loving parents, devoted teachers and an extremely rare genetic disorder.
Dr. David A. Weinstein was working as a resident at Boston Children’s Hospital in 1994 when he encountered his first young patients with glycogen storage disease (GSD). He followed up on these and other cases and was asked to report on his findings at a GSD conference in 1998.
The making of a memorable book requires the skills of an alchemist. Every author starts with the raw material of his or her own experience and expertise, but it can take a certain secret ingredient — passion, vision, inspiration — to transform the dross into gold.
An Egyptian official said the leaders of the Palestinian Hamas and Fatah factions had agreed at talks in Cairo on Wednesday to implement a long-delayed reconciliation pact, although it was unclear if the deal would extend beyond holding more talks.
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