Growing From the Depths of Pain

The physician who came to see me happened to be a Persian Jew. After listening to my story and examining me, he diagnosed a rare, genetic, progressively debilitating neuromuscular disease found among Persian Jews called Hereditary Inclusion Body Myopathy (HIBM). This is a muscle-wasting disease that manifests in the prime of one’s life and can … Continue reading Growing From the Depths of Pain